Saturday, January 24, 2009

Results

We received the call about Zoe's MRI. It was normal. So what does that mean exactly was the question that blurted out of my mouth. The response was, it means there is not a tumor or abnormality of the structure of the brain or surrounding bones that could be causing it and it confirms she has Epilepsy. Deep breathe........Okay. So what is next? We will look into upping her dosage and will see you next month for your appointment.

so folks, does not look like we are going to slip out of this any easy way. PLEASE keep us in your prayers. and I am not saying that a brain tumor would have been easier not by any means.....now we appear to be in it for the long haul. The mood swings may get the best of us in the meantime. Thankfully John is here and anticipated to be home with us for the next several years and if we can continue to balance each other with dealing with these times it makes it easier. She tends to pick one person to blow up at and the other can work her out of the mood with time and effort but it is exhausting. For instance last night she decided she did not like Turkey Casserole or anything in it. Not cheese, peas, milk, turkey or noodles. John was trying to encourage her to eat and she kept wanting to put the white things (her noodles) on his plate. Which he did not like and she was fever pitched that they were not going to remain on her plate to taint her food. He got up to get her some milk as it got knocked over by her fork and her mood switched. Eventually I showed her samples of everything that went in there and had her test it to see if she liked it. Wish she did. She ended up eating about half of what she was served but this was after everyone else had left the table and it was just she and I. But this can happen with taking off pajamas, to brushing teeth, to going in the car. and you can see the change of facial expression happen too. I have never seen anything like it. Sometimes it is John she blows up at but mostly it is me when I ask her to pick up the toys she was playing with or go try to potty, etc.. All of this started after her Grand Mal on Veteran's Day. It has been a long couple of months.

1 comment:

Jenny said...

Hang in there. You are doing a great job and know that you all are in my prayers. Keep yourself informed about epilepsy. I have several links on Ben's blog. The one in Toronto seems to be doing a lot of research. Love you, Jen