Friday, February 13, 2009

Unbelievable

My husband had a layout today and was told to bring certain items in. These items were turned back in as they have been found to be defective. WHAT! One of the items was the protective vest he wore in Iraq..........and you tell me for 15 months in a warzone he was issued something defective to wear to protect him? Doesnt the Us Govt spend tons of money on items and shouldn't they have a top notch quality control system that should have caught this months ago before being issued to a soldier on the front lines?!?!?! I am stunned beyond too many words at this news and even more so that they did not issue him anything to replace it........ but since he is home to me that seems okay at this moment. However, we still have soldiers over there and what pray tell are they wearing? Defective vests??????

Thursday, February 12, 2009

Whew.........








my middle child Zoe turned 4 yesterday. HAPPY BIRTHDAY baby girl. We had an impromptu birthday on Sunday afternoon. I finally was feeling better after taken off all the meds and almost every thing is finally healed ........I still have two open areas which are stubborn but they are making progress now too. A change of compression garments has now helped that. So back to the subject.............we invited just the neighbors and had cake, pink lemonade (her new favorite) locarb drink.......and played games outside as it was 75 degree weather. Beautiful and the mess was minimal. They played Red Rover, soccer, freeze tag, hide and seek and with bubbles. The kids had a blast and here are some of the pics. We call her our Princess Sunshine so it was only appropriate that her cake represented the Princess she is.
I was EXHAUSTED after but to see the smiles on her face was well worth it. She did have an episode of "OCD" during the middle of it so we deviated for a few minutes to allow her to get past it and not TOTALLY melt down. Hoping on March 3rd, the doc will switch meds to help with this although in a chat group I am with this appears to be the norm. GOD HELP ME. A PMSing pre-teen, a stubborn ill 4 year old and a stubborn potty training 2 year old and a hubby who has a thin patience level with all this (at times) depends on the stress level at home and how much sleep he was able to get.....which only leads to more chaos. I think I could loss my mind at times......this might not be so bad if I were totally healthy so I am praying for that. I did get my B12 shot again today and on Tuesday I will go in for another Transfusion. I know that will help SO much..........hanging in there until then. Major prayers are asked for as I have not been sleeping well they put me back on a sleeping pill but hope that it is a symptom of the low iron and they can wean me off of it after the transfusion . Even with it though I have only averaged 4 hours a night at best. Love to all.

Sunday, February 1, 2009

Progress

When I returned on Thursday, the Doc was not there as his mother-in-law had just passed away in hospice. So please remember him and his family in your prayers. The nurses were able to remove another 90 cc's of fluid and made the appt for Tuesday again. My lower scar seems completely healed and I can move freely now and it is much easier to get in and out of bed. A little rug burn feel every now and then but that is from the scar tissue stretching they said.
Now the upper half seems to be slowly making progress. I will be glad when the fluid disappates totally but it seems better but maybe that is just the pain killers talking!?!?!?
I did get up and make some new to us food for Zoe...........her doc mentioned putting her on the Ketogenic diet. Well that eventually will entail a hospital stay for her to go totally Ketogenic but we can incorporate some more low carb meals into our diet. Maybe that will help more. We also are going to start with a food diary to see if maybe a possible food could be her trigger since meds have had to be upped twice within a month. I would prefer if possible to try a more healthier attempt to control it then to increase meds constantly. I am willing to try anything than to ever see another seizure. so we made french toast pancakes. They were good.....really good. but instead of bread you crush up .....ready for this? pork rinds.....yep that is right pork rinds...they have no carbs. and everyone loved them. I will provide recipe if anyone is interested. We also made low carb carrot cake...........and found out Zoe does not like cream cheese. She likes the cake but not the frosting. It will be trial and error to find out the likes and no likes with this new diet.
Zoe's birthday is coming up and we have special plans for her. Doc has already approved it as it is two weeks away and he said if I take it easy until then. He has no problem with a long weekend at Disney. but shhhhhh. Do not tell. She has no idea she will be having breakfast with the Princesses in a Castle. Nor see Cinderella her favorite in person. We are taking advantage of Disney's gift to the military of one free week long ticket and $99 for all additional week long tickets. Plus we already have two 3 day tickets left over from years ago. The hotel we are staying at has deep military discounts with free breakfast, free parking and shuttles to all attractions. We did this for Kendra's 4th or 5th birthday too. Next year we will be too far to travel this far for it so this year it seems more reasonable to do it. and as always no looking back to say we should have......